Mrs B

Thanks for the message on the CBeebies thread, I've just spotted it .  x

am so pleased for you, fab news! I bet you're excited.

How goes everything else? I feel a tad out of the loop. how is C?

Very excited, slightly worried about money etc as I'm not working at the moment  - but have discovered moneysavingexpert and am in awe of how little they can spend - we'll just have to make changes!

Charlotte - she's doing so well, thank you for asking.  We were at Great Ormond St last week for an overnighter, for her 5th cycle of chemo and IVIg (another immune-y type infusion that takes so damned long).  It was our first appointment then since we moved back south and we met her new Dr who seems very good.  We've got a more detailed plan of treatment, which included one more cycle of chemo next month and then that'll be the end of that.  She'll remain on the mild chemo drug, which is used really commonly in children with other auto-immune conditions such as arthritis and she'll also stay on the steroids.  Finishing the chemo means she can start nursery in February, which I'm so pleased about.  I think she's thrived being at home with me all this time, but she really needs to start being with other children again and realising she's not queen bee all the time!

We need to decide whether we'll have her central line (IV access via a tube that enters at her chest, tunnelled under her skin, under her collar bone and enters a major vein in her neck) removed, or to leave it for now.  Removing it means monthly bloods the normal way, with 'magic cream' and weekly injections for the milder drug.  Leaving it means no needles, but the constant worry of having it, the risks involved, but she can't go swimming.  Apparently it's up to me and H...

You got the long version there!  I've not updated properly about her for a while, I have been meaning to but I've not got around to it. 

How are you?  Was very pleased to read the Hitched awards about your C!

Oh that all sounds so so positive, brilliant stuff. I reckon she'll absolutely love nursery, Tabitha goes mad when we go past hers on the weekend and asks to go in! I was really thinking she'd struggle with the transition but she hasn't at all, and she was also v used to being at home and Queen Bee. I reckon Charlotte will thrive there. am so glad she's coming to the end of the chemo.

I always get cheered up by looking at your avatar picture, such a beautiful smile.

that sounds a tough decision to make re the line. I don't know what I'd do tbh. Must be a tricky one for you. I guess you can probably take a little while to decide and leave things as they are in the meantime.

Am glad I asked, I was thinking of you all the other day and when I saw your BFP I wondered how you were all getting on. sounds like 2009 is going to be a good year for you!

xx

Thank you - it means so much to me to know that people are thinking about us and wishing us well. 

I'm extra emotional at the moment I know, but your lovely post has made me cry!

spot the newly pregnant lady bless you.

I often think of you all, actually, hope you're not too freaked out! Big believer here in the power of positive thought. so I often think about Charlotte and how she's getting on. From what I read of her on here and from her picture she's such a sweetheart, so it's easy to keep her in mind.

Not freaked out at all .  I totally agree, about the power of positive thought.  Thank you.