motor neurone update today sens .......

I'm so sorry, I don't know what's going on there. Add me on Face book.

Let me know when you've done it and I'll edit here. Am reluctant to post email direct as I get enough spam as it is. lol. :)

Unique at last:

I'm so sorry, I don't know what's going on there. Add me on Face book, real name (I'll be the only one there).

Let me know when you've done it and I'll edit here. Am reluctant to post email direct as I get enough spam as it is. lol. :)

Thanks for that, I have added you x

Kat, I think you need to edit your post too, as you've quoted UAL's post with her full name on it.

Have you had any more news about your mum?

*ginni of the lamp*:

Kat, I think you need to edit your post too, as you've quoted UAL's post with her full name on it.

Have you had any more news about your mum?

I have edited my post ( didnt think )

No news as of yet but should hear for sure today and mum will more than likely be moved to the RVI today.

Will update later if any further news xxxx

  Hi all well we have finally had it confirmed that my mum has MND.

Her Doctor  at Rake lane has been great with us this afternoon and had even printed out info for us incase we weren't taking things in.

My mum is 58 and the Doc said from diognosis people usually live anything from 18 months to 5 years 10 years would be very optimistic

My poor mum, my poor Daughter ( whom my mum has brought up as i was young when i had her )

My poor family full stop.

I was obviously there at a meeting this afternoon but my Daughter doesnt know how bad things are. Me and mum talked and i am going to tell her tomorrow. It is going to be one of the hardest things i have EVER done.

My OH has been great for the last few weeks and even shed a few tears when i got home ( something he doesnt do very often )

I know we have to be positive and i know there is NOTHING we can do.

They are going to get my mum home asap but i think it will still be a few weeks yet as they have to assess and adapt the house she shares with my Daughter and grandaughter. She will stay there as long as possible but i know there will be a time when she will no longer be able to stay at home

I know this is a me post and im sorry its just good to type and get it out xxx

  Hi all well we have finally had it confirmed that my mum has MND.

Her Doctor  at Rake lane has been great with us this afternoon and had even printed out info for us incase we weren't taking things in.

My mum is 58 and the Doc said from diognosis people usually live anything from 18 months to 5 years 10 years would be very optimistic

My poor mum, my poor Daughter ( whom my mum has brought up as i was young when i had her )

My poor family full stop.

I was obviously there at a meeting this afternoon but my Daughter doesnt know how bad things are. Me and mum talked and i am going to tell her tomorrow. It is going to be one of the hardest things i have EVER done.

My OH has been great for the last few weeks and even shed a few tears when i got home ( something he doesnt do very often )

I know we have to be positive and i know there is NOTHING we can do.

They are going to get my mum home asap but i think it will still be a few weeks yet as they have to assess and adapt the house she shares with my Daughter and grandaughter. She will stay there as long as possible but i know there will be a time when she will no longer be able to stay at home

I know this is a me post and im sorry its just good to type and get it out xxx

  Hi all well we have finally had it confirmed that my mum has MND.

Her Doctor  at Rake lane has been great with us this afternoon and had even printed out info for us incase we weren't taking things in.

My mum is 58 and the Doc said from diognosis people usually live anything from 18 months to 5 years 10 years would be very optimistic

My poor mum, my poor Daughter ( whom my mum has brought up as i was young when i had her )

My poor family full stop.

I was obviously there at a meeting this afternoon but my Daughter doesnt know how bad things are. Me and mum talked and i am going to tell her tomorrow. It is going to be one of the hardest things i have EVER done.

My OH has been great for the last few weeks and even shed a few tears when i got home ( something he doesnt do very often )

I know we have to be positive and i know there is NOTHING we can do.

They are going to get my mum home asap but i think it will still be a few weeks yet as they have to assess and adapt the house she shares with my Daughter and grandaughter. She will stay there as long as possible but i know there will be a time when she will no longer be able to stay at home

I know this is a me post and im sorry its just good to type and get it out xxx

I am so sorry it wasn't better news. I am thinking of you

I have only just come to this post, but I am so sorry to hear the news.  I hope your daughter is ok when you tell her the news, will be thinking of you all

Clare xxx

Thinking of you .  I'm sorry you are having to go through this.

x

Ah Kat, sorry, that's really bad news for you all.  Rake Lane seem to be quite proactive with degenerative disease stuff if my gran's anything to go by (Parkinsons) so hopefully they'll be supportive.  As I said in a previous post, I'm a speech and language therapy student - we haven't done speech problems related to MND yet, but if there's anything specific  can help with then please ask, my Uni library has a huge range of textbooks on the subject, plus most of the major journals.

*ginni of the lamp*:

Ah Kat, sorry, that's really bad news for you all.  Rake Lane seem to be quite proactive with degenerative disease stuff if my gran's anything to go by (Parkinsons) so hopefully they'll be supportive.  As I said in a previous post, I'm a speech and language therapy student - we haven't done speech problems related to MND yet, but if there's anything specific  can help with then please ask, my Uni library has a huge range of textbooks on the subject, plus most of the major journals.

Thanks Ginni,

Her speach is ok at the moment although a little slurred. They have mentioned today the Voice things ( forgive my ignorance but im not sure what they are called )

I can not fault the staff at Rake lane. Mum is on ward 8 and they are keeping her there for the moment and she will attend the Neurology clinics at the RVI.

Thanks again for the offer i know where to come if  or when her speech gets worse xx

Kat, I'm rubbish at saying the right thing, but I'm really sorry for your news.

I'm struggling to find the right words Kat, I was really hoping this wouldn't be the diagnosis. We're all here whenever you need to talk things through.  I wish we could do more.

Consuela Banana Hammock:

I'm struggling to find the right words Kat, I was really hoping this wouldn't be the diagnosis. We're all here whenever you need to talk things through.  I wish we could do more.

its just nice to have somewhere to let it out xxx